Saturday, April 12, 2014

Preventing the First Cesarean: Don't Go to the Hospital Too Early

Dark line with squares is overall cesarean rate,
Light line with triangles is primary cesarean rate,
Line with diamonds that goes up and then plummets is the VBAC rate

As part of Cesarean Awareness Month, we are discussing the long-term implications of a high cesarean rate, as well as how to lower the sky-high cesarean rate in women of size.

One of the important parts of lowering the overall cesarean rate is preventing the first (or "primary") cesarean.

As you can see from the chart, the primary cesarean rate (middle line) has risen over the years pretty much in parallel with the overall cesarean rate, even as the VBAC (Vaginal Birth After Cesarean) rate has drastically declined.

The VBAC rate has declined so strongly because many places have VBAC bans in place. Once a woman has that first cesarean, she usually has repeat cesareans thereafter, unless she is one of the lucky ones who can find a provider that is truly willing to support VBAC.

Thus the first step to lowering the high overall cesarean rate is to prevent the very first cesarean from happening whenever possible.

And one important step in preventing primary cesareans is not going to the hospital too early in labor. 

Research has shown that when women are admitted early in labor ("latent" labor), they have a much greater chance of having a cesarean than if they get to the hospital a bit later, when contractions are consistent and dilation starts to change more quickly ("active" labor).

In fact, a recent consensus statement from the American Congress of Obstetricians and Gynecologists and the Society for Fetal-Maternal Medicine suggests that the definition of "active" labor be changed from 4 cm to 6 cm.

Lamaze International has highlighted this with their related discussions on "Six is the New Four."

This proposed change is based on research that suggests that labor tends to progress more slowly in the early stages of labor than recognized in previous guidelines, and that many "failure to progress" cesareans might be prevented by being just a little bit more patient during labor.

Below is yet another study that confirms the importance of not going into the hospital until labor is well-established and "active."

In this study, more than half the women were admitted during "preactive" labor, and those that were had more than twice the c-section rate of those who were admitted in active labor.

If half of women are regularly being admitted into the hospital during latent labor, this strongly suggests that delaying admission to the hospital until labor is truly in the "active" phase might help lower the primary cesarean rate significantly.

This may be a particularly important consideration for women of size. Some research suggests that "overweight" and "obese" women have longer labors, especially in the stage just before transition. Although no one has actually studied yet whether delaying admission until 6 cm in obese women would lower cesarean rates in that group, it certainly seems like a logical conclusion.

In combination with lowering unnecessary induction rates and being more patient in labor, delaying hospital admission until 6 cm might really help impact the cesarean rate in obese women.

Summary

The take-home message for mothers is that if you plan to birth in the hospital, don't rush to the hospital in early labor.

Obviously, if there is something that is concerning you or doesn't feel right, it's important to be evaluated, and you should not hesitate to go in and ask for evaluation. Certain other medical situations, of course, might also call for early evaluation; your care provider will help you determine the situations to be cautious about.

However, most of the time, there is no need to be in the hospital right away if labor has started. The sooner you go in, the more likely you are to have interventions like oxytocin augmentation and cesareans.

The take-home message for hospitals is to have stricter admissions policies, given that around half of women are being admitted in early labor. The secondary message is to allow more time in labor before moving to a cesarean (barring fetal distress); a "failure to progress" cesarean is too often a "failure to wait" cesarean.

Bottom line: To lower the rate of primary cesareans, wait till labor is well-established before going to the hospital, and practice more patience during labor before moving to a cesarean if all else is well. 


References

J Midwifery Womens Health. 2014 Jan;59(1):28-34. doi: 10.1111/jmwh.12160. Epub 2014 Feb 11. Outcomes of nulliparous women with spontaneous labor onset admitted to hospitals in preactive versus active labor. Neal JL, Lamp JM, Buck JS, Lowe NK, Gillespie SL, Ryan SL. PMID: 24512265
INTRODUCTION: The timing of when a woman is admitted to the hospital for labor care following spontaneous contraction onset may be among the most important decisions that labor attendants make because it can influence care patterns and birth outcomes. The aims of this study were to estimate the percentage of low-risk, nulliparous women at term who are admitted to labor units prior to active labor and to evaluate the effects of the timing of admission (ie, preactive vs active labor) on labor interventions and mode of birth. METHODS: Data from low-risk, nulliparous women with spontaneous labor onset at term gestation were merged from 2 prospective studies conducted at 3 large Midwestern hospitals...RESULTS: Of the sample of 216 low-risk nulliparous women, 114 (52.8%) were admitted in preactive labor and 102 (47.2%) were admitted in active labor. Women who were admitted in preactive labor were more likely to undergo oxytocin augmentation (84.2% and 45.1%, respectively; odds ratio [OR], 6.5; 95% confidence interval [CI], 3.43-12.27) but not amniotomy (55.3% and 61.8%, respectively; OR, 0.8; 95% CI, 0.44-1.32) when compared to women admitted in active labor. The likelihood of cesarean birth was higher for women admitted before active labor onset (15.8% and 6.9%, respectively; OR, 2.6; 95% CI, 1.02-6.37). DISCUSSION: Many low-risk nulliparous women with regular, spontaneous uterine contractions are admitted to labor units before active labor onset, which increases their likelihood of receiving oxytocin and giving birth via cesarean. An evidence-based, standardized approach for labor admission decision making is recommended to decrease inadvertent admissions of women in preactive labor. When active labor cannot be diagnosed with relative certainty, observation before admission to the birthing unit is warranted.
Previous Research on Early Admission in Labor

Midwifery. 2013 Dec;29(12):1297-302. doi: 10.1016/j.midw.2013.05.014. Epub 2013 Jul 24.
Influence of timing of admission in labour and management of labour on method of birth: results from a randomised controlled trial of caseload midwifery (COSMOS trial). Davey MA1, McLachlan HL, Forster D, Flood M. PMID: 23890679
OBJECTIVE: to explore the relationship between the degree to which labour is established on admission to hospital and method of birth...SETTING: a large tertiary-level maternity service in Melbourne, Australia. PARTICIPANTS: English-speaking women with no previous caesarean section at low risk of complications in pregnancy were recruited to a randomised controlled trial. Trial participants whose management did not include a planned caesarean and who were admitted to hospital in spontaneous labour were included in this secondary analysis of trial data (n=1532)... RESULTS: ...Pooling the two randomised groups of nulliparous women, and after adjusting for randomised group, maternal age and maternal body mass index, early admission to hospital was strongly associated with caesarean section. Admission before the cervix was 5 cm dilated increased the odds 2.4-fold (95%CI 1.4, 4.0; p=0.001). Augmentation of labour and use of epidural analgesia were each strongly associated with caesarean section (adjusted odds ratios 3.10 (95%CI 2.1, 4.5) and 5.77 (95%CI 4.0, 8.4) respectively. CONCLUSION: these findings that women allocated to caseload care were admitted to hospital later in labour, and that earlier admission was strongly associated with birth by caesarean section, suggest that remaining at home somewhat longer in labour may be one of the mechanisms by which caseload care was effective in reducing caesarean section in the COSMOS trial.
J Obstet Gynecol Neonatal Nurs. 2003 Mar-Apr;32(2):147-57; discussion 158-60.
Impact of collaborative management and early admission in labor on method of delivery.
Jackson DJ1, Lang JM, Ecker J, Swartz WH, Heeren T. PMID: 12685666
OBJECTIVE: This study compared the effects of early admission in labor and perinatal care provider on delivery method. Higher spontaneous vaginal delivery rates for certified nurse midwives as compared with physicians have been reported in observational studies and randomized clinical trials. Certified nurse midwives, with their more expectant approach to labor management, would be expected to admit women later in labor than obstetricians. METHODS: Prospective cohort study of 2,196 low-risk pregnancies, with singleton, vertex infants admitted in spontaneous labor. Independent and joint effects of perinatal care provider and cervical dilation at admission on delivery method were evaluated... RESULTS: Fewer (23.4%) women in collaborative care were admitted in early labor (< 4 cm cervical dilation) than women managed by obstetricians (95% CI = -27.6 to -19.2). Obstetrician care had 9% to 30% fewer spontaneous vaginal deliveries. Women admitted early in labor also had 6% to 34% fewer spontaneous vaginal deliveries. Evaluation of joint effects suggested that interaction between obstetrician provider and earlier admission increased the risk of operative delivery. CONCLUSION:
Later admission in labor (at 4 cm or greater cervical dilation) and management of perinatal care by certified nurse midwives in collaboration with obstetricians increased the rate of spontaneous vaginal delivery in low-risk women.

Saturday, April 5, 2014

Long-Term Implications of a High Cesarean Rate in Obese Women

April is Cesarean Awareness Month.

This is an annual observance sponsored by the International Cesarean Awareness Network (ICAN) to raise awareness of the implications of a high cesarean rate and lack of access to VBAC (Vaginal Birth After Cesarean).

It's always important to remind readers that this observance is not meant to make anyone feel bad about having had a cesarean, or to imply that having a cesarean makes you "less of a mother" or "less of a woman." Nonsense.

Cesareans can be life-saving and wonderful when used appropriately, but they are not risk-free. When over-utilized, they can have dramatic negative consequences too, especially long-term.

Cesarean Awareness Month is not about any one person's experience at all, but rather about the widespread public health implications of a high cesarean rate and lack of access to VBAC. And this certainly is an under-appreciated public health care issue.

Long-Term Risks of Too Many Cesareans

As we posted about extensively last year, one of the overlooked long-term consequences of a high cesarean rate is an increase in the risk for placental disorders.

Specifically, there is a substantial increase in the risk for:
Here is yet another study that confirms cesarean section as a strong risk factor for placental disorders.

Although this meta-analysis does not evaluate the risk by number of prior cesareans, merely by the presence of prior cesarean, a number of other studies have shown that the risk increases strongly with multiple prior cesareans in a dose-dependent manner.

This is why it is important not to have cesarean after cesarean unless it is medically necessary, and why the ban on VBACs in many hospitals is so frustrating.

The ban on VBAC (Vaginal Birth After Cesarean) in some places means that thousands of women have been and are continuing to be subjected to unnecessary cesareans. This in turn is raising the incidence of placental disorders like previa, abruption, and accreta, as well as maternal morbidity from the surgeries and the very serious complication of cesarean scar pregnancy.

Although with good care, many of these complications can be handled, they do often result in life-threatening hemorrhages, bladder or renal damage, uterine ruptures, hysterectomies, prematurity, stillbirth, and even maternal deaths at times.

Although these complications are overall rare, they are happening to real women, with real results, sometimes devastating ones.

This is why it is SO important to do cesareans only when truly indicated, to avoid automatic repeat cesareans, and to keep VBACs available as an option everywhere.

Implications for Women of Size

Long-term complications of cesareans is a particularly pertinent issue for women of size.

If a 32.8% overall national c-section rate is too high, then the rate in "obese" women is an even GREATER reason for concern because in most studies it starts at 30% and goes as high as 40%50%, 60%, and even 70% in some places and groups.

And many of the cesareans done in obese women are done without any labor at all. Many care providers have a de-facto policy of automatic "elective" cesareans for very obese women, despite the fact that this does not improve outcomes.

This disproportionately exposes the larger mother to the risks of cesareans (hemorrhage, infection, blood clots, bladder injury, and anesthesia problems) and subsequent placental disorders. This is insane. Yet few in the obstetric community even question the high cesarean rate in obese women.

This is why observing Cesarean Awareness Month is so important. It's not about putting down anyone who had a c-section, but to raise awareness of the health implications of a too-high cesarean rate.

In addition, it's time for care providers to focus on the implications of the sky-high cesarean rate in women of size and what can be done to lower that rate.

This is why I always observe Cesarean Awareness Month here and why I urge others to do so too.


References

Cesareans and Subsequent Placental Disorders

J Perinat Med. 2014 Feb 24. pii: /j/jpme-ahead-of-print/jpm-2013-0199/jpm-2013-0199.xml. doi: 10.1515/jpm-2013-0199. [Epub ahead of print] Cesarean section and placental disorders in subsequent pregnancies - a meta-analysis. Klar M, Michels KB. PMID: 24566357
...OBJECTIVE: To examine the association between CS and three major types of placental disorders (placental abruption, placenta previa, and placenta accreta with its variants increta/percreta) in subsequent pregnancies. SEARCH STRATEGY: ...observational studies published between January 1990 and July 2011 for examining the association between CS and placental disorders in subsequent pregnancies, without focusing on the effect of increasing number of CSs... DATA COLLECTION AND ANALYSIS: Five cohort and 11 case-control studies met the inclusion criteria for this meta-analysis...MAIN RESULTS: The calculated summary odds ratio was 1.47 (95% confidence interval, CI: 1.44-1.51) for placenta previa, 1.96 (95% CI: 1.41-2.74) for placenta accreta, and 1.38 (95% CI: 1.35-1.41) for placental abruption. CONCLUSION: In this meta-analysis, cesarean delivery appeared as a consistently reported risk factor for all three major forms of placental disorders in subsequent pregnancies.
Obstet Gynecol Clin North Am. 2013 Mar;40(1):137-54. doi: 10.1016/j.ogc.2012.12.002. Placenta accreta, increta, and percreta. Wortman AC, Alexander JM. PMID: 23466142
Placenta accreta is an abnormal adherence of the placenta to the uterine wall that can lead to significant maternal morbidity and mortality. The incidence of placenta accreta has increased 13-fold since the early 1900s and directly correlates with the increasing cesarean delivery rate...
Placenta. 2012 Apr;33(4):244-51. doi: 10.1016/j.placenta.2011.11.010. Epub 2012 Jan 28. Placenta accreta: pathogenesis of a 20th century iatrogenic uterine disease. Jauniaux E, Jurkovic D. PMID: 22284667
...Overall these data support the concept that abnormal decidualization and trophoblastic changes of the placental bed in placenta accreta are secondary to the uterine scar and thus entirely iatrogenic.
Am J Obstet Gynecol. 2011 Dec;205(6 Suppl):S2-10. doi: 10.1016/j.ajog.2011.09.028. Epub 2011 Oct 6. Long-term maternal morbidity associated with repeat cesarean delivery. Clark EA, Silver RM. PMID: 22114995
Concern regarding the association between cesarean delivery and long-term maternal morbidity is growing as the rate of cesarean delivery continues to increase. Observational evidence suggests that the risk of morbidity increases with increasing number of cesarean deliveries. The dominant maternal risk in subsequent pregnancies is placenta accreta spectrum disorder and its associated complications. A history of multiple cesarean deliveries is the major risk factor for this condition. Pregnancies following cesarean delivery also have increased risk for other types of abnormal placentation, reduced fetal growth, preterm birth, and possibly stillbirth. Chronic maternal morbidities associated with cesarean delivery include pelvic pain and adhesions. Adverse reproductive effects may include decreased fertility and increased risk of spontaneous abortion and ectopic pregnancy. Clinicians and patients need to be aware of the long-term risks associated with cesarean delivery so that they can be considered when determining the method of delivery for first and subsequent births.
J Matern Fetal Neonatal Med. 2011 Nov;24(11):1341-6. doi: 10.3109/14767058.2011.553695. Epub 2011 Mar 7. The effect of cesarean delivery rates on the future incidence of placenta previa, placenta accreta, and maternal mortality. Solheim KN1, Esakoff TF, Little SE, Cheng YW, Sparks TN, Caughey AB. PMID: 21381881
OBJECTIVE: The overall annual incidence rate of caesarean delivery in the United States has been steadily rising since 1996, reaching 32.9% in 2009. Primary cesareans often lead to repeat cesareans, which may lead to placenta previa and placenta accreta. This study's goal was to forecast the effect of rising primary and secondary cesarean rates on annual incidence of placenta previa, placenta accreta, and maternal mortality. METHODS: A decision-analytic model was built using TreeAge Pro software to estimate the future annual incidence of placenta previa, placenta accreta, and maternal mortality using data on national birthing order trends and cesarean and vaginal birth after cesarean rates. Baseline assumptions were derived from the literature, including the likelihood of previa and accreta among women with multiple previous cesarean deliveries. RESULTS: If primary and secondary cesarean rates continue to rise as they have in recent years, by 2020 the cesarean delivery rate will be 56.2%, and there will be an additional 6236 placenta previas, 4504 placenta accretas, and 130 maternal deaths annually. The rise in these complications will lag behind the rise in cesareans by approximately 6 years. CONCLUSIONS: If cesarean rates continue to increase, the annual incidence of placenta previa, placenta accreta, and maternal death will also rise substantially.
Obesity and Over-Utilization of Cesareans

Am J Obstet Gynecol. 2012 May;206(5):417.e1-6. doi: 10.1016/j.ajog.2012.02.037. Epub 2012 Mar 7. Maternal superobesity and perinatal outcomes. Marshall NE1, Guild C, Cheng YW, Caughey AB, Halloran DR. PMID: 22542116
OBJECTIVE: The purpose of this study was to determine the effect of maternal superobesity (body mass index [BMI], ≥ 50 kg/m(2)) compared with morbid obesity (BMI, 40-49.9 kg/m(2)) or obesity (BMI, 30-39.9 kg/m(2)) on perinatal outcomes. STUDY DESIGN: We conducted a retrospective cohort study of birth records that were linked to hospital discharge data for all liveborn singleton term infants who were born to obese Missouri residents from 2000-2006. We excluded major congenital anomalies and women with diabetes mellitus or chronic hypertension. RESULTS: There were 64,272 births that met the study criteria, which included 1185 superobese mothers (1.8%)...Almost one-half of all superobese women (49.1%) delivered by cesarean section, and 33.8% of superobese nulliparous women underwent scheduled primary cesarean delivery. 
BJOG. 2011 Mar;118(4):480-7. doi: 10.1111/j.1471-0528.2010.02832.x. Epub 2011 Jan 18.
Planned vaginal delivery or planned caesarean delivery in women with extreme obesity.
Homer CS1, Kurinczuk JJ, Spark P, Brocklehurst P, Knight M. PMID: 21244616
OBJECTIVE: To compare the outcomes of planned vaginal versus planned caesarean delivery in a cohort of extremely obese women (body mass index ≥ 50 kg/m(2)). DESIGN: A national cohort study using the UK Obstetric Surveillance System (UKOSS). SETTING: All hospitals with consultant-led maternity units in the UK. POPULATION: Five hundred and ninety-one extremely obese women delivering in the UK between September 2007 and August 2008...CONCLUSIONS: This study does not provide evidence to support a routine policy of caesarean delivery for extremely obese women on the basis of concern about higher rates of delivery complications, but does support a policy of individualised decision-making on the mode of delivery based on a thorough assessment of potential risk factors for poor delivery outcomes.

Sunday, March 30, 2014

Wait for Spontaneous Labor If the Cervix Isn't Ripe


Here is a new study that suggests that it may be better to await spontaneous labor in first-time obese mothers with an unripe cervix, rather than trying to force labor to start regardless of the Bishop's Score.

Reference

Am J Obstet Gynecol. 2014 Jan 31. pii: S0002-9378(14)00063-5. doi: 10.1016/j.ajog.2014.01.034. [Epub ahead of print] Risk of cesarean in obese nulliparous women with unfavorable cervix: elective induction vs expectant management at term. Wolfe H1, Timofeev J2, Tefera E3, Desale S3, Driggers RW2. PMID: 24486226
OBJECTIVE: The objective of the study was to examine maternal and neonatal outcomes in obese nulliparous women with an unfavorable cervix undergoing elective induction of labor compared with expectant management after 39.0 weeks. STUDY DESIGN: This was a retrospective analysis of a cohort of nulliparous women with a vertex singleton gestation who delivered at MedStar Washington Hospital Center from 2007 to 2012. Patients with unfavorable cervix between 38.0 and 38.9 weeks (modified Bishop <5) and a body mass index of 30.0 kg/m2 or greater at the time of delivery were included. Women undergoing elective induction between 39.0 and 40.9 weeks' gestation were compared with those who were expectantly managed beyond 39.0 weeks. Outcomes were analyzed using χ2, Student t, or Wilcoxon rank sum tests as appropriate with a significance set at P < .05. RESULTS: Sixty patients meeting inclusion criteria underwent elective induction of labor and were compared with 410 patients expectantly managed beyond 39.0 weeks. The rate of cesarean delivery was significantly higher in the electively induced group (40.0% vs 25.9%, respectively, P = .022). Other maternal outcomes, including operative vaginal delivery, rate of third- or fourth-degree lacerations, chorioamnionitis, postpartum hemorrhage, and a need for a blood transfusion were similar. The neonatal intensive care unit admission rate was higher in the electively induced group (18.3% vs 6.3%, P = .001). Birthweight, umbilical artery pH less than 7.0, and Apgar less than 7 at 5 minutes were similar. CONCLUSION: Elective labor induction at term in obese nulliparous parturients carries an increased risk of cesarean delivery and higher neonatal intensive care unit admission rate as compared with expectant management.

Wednesday, March 26, 2014

Emergency Preparedness: Food Without Power

image from Wikimedia
We've been talking periodically about Emergency Preparedness and today we continue that thread.

Previously, we discussed preparing for the most common serious family emergency, which is a house fire. Then we talked about having enough water in an emergency, which is the first and most important prep to have. We've also talked about staying warm without power, having lights without power, and the importance of having emergency food and water reserves and emergency kits. We've also covered CERT (Community Emergency Response) Training and getting ham radio licensure.

For those wondering why I sometimes write about preparedness on a blog usually devoted to pregnancy/birth and size acceptance issues, emergency preparedness falls under the "parenting" and "healthy living" mission of the blog (see "About this blog," above).

Having lived in wildfire, tornado, blizzard and earthquake zones (as well as living not too far away when a major earthquake struck), I know how important disaster preparedness is, yet it's a topic neglected by so many people. I want to raise awareness of the importance of being prepared, with special attention to the preparedness needs of families.

Part of parenting is keeping your children safe, and the truth is that bad weather and disasters happen everywhere sooner or later. You can't guarantee a child's safety during a disaster, but you can greatly improve their chances afterwards if you are prepared. Many people die or are hurt after disasters due to poor conditions or lack of safe food/water, but much of this is preventable with good preparedness.

And of course, everyone experiences power outages at some point; it's amazing just how ill-prepared many of us are to be without electricity. Yet people die even during routine power outages because they cook food unsafely, get carbon monoxide poisoning, or inadvertently set their dwellings on fire. It's important to keep your children safe and as comfortable as possible, whether you are facing a major disaster or just a common power outage.

That's why today we are discussing how to feed your family during a power outage or an extended emergency where power and safe food/water may be scarce.

Preparing Food Without Power

The first step in feeding your family in an emergency is having plenty of ready-made food on hand that you can eat without cooking. Items like energy bars, beef jerky, fruit leather, nuts, trail mix, peanut butter, canned fruit, crackers, dried fruit, canned meat, and granola bars are all filling food that don't require any cooking. These are often enough for a short-term power outage.

However, if a power outage lasts for long, these foods get repetitive quickly, and a hot meal can be important for keeping up your energy, not to mention a great morale-booster. A hot meal also helps keep you warm from the inside. A little water, a few fresh or dehydrated vegetables, and a bit of canned meat, beans, or grains can be used to make a great soup or stew to warm you up and make you feel a lot better.

However, how do you heat it up? Sure, you can put a pot into the fireplace at your house, but what if you run out of firewood? What if you don't have a fireplace at all? It's important to have several ways to cook without power because you never know what circumstances you might be in.

The best answer for cooking without power depends on your circumstances, but options include:
Read more about these options from the links in the Resources section below.

Just be aware that most of these methods should only be used outside because dangerous fumes can build up (another reason for that carbon monoxide detector). Only the Sterno/Butane stove and MRE heater can be used to cook inside safely. (The haybox can be used inside, once the initial cooking has been done outside.)

Another limit to many of these options is that they depend on outside sources of fuel, which get used up pretty quickly in a power outage or emergency. That's why it's so important to have several options in your arsenal. You want to have multiple choices available to you when the chips are down.

Campfires and Fireplaces

image from Wikimedia
In a power outage or emergency, many people are going to use their fireplace or a campfire for cooking. However, campfires and fireplaces, while handy, are not a very efficient cooking method. They use up a lot of fuel, take a long time to get to the cooking stage, and can easily burn the food. In addition, outdoor campfires are not very practical in bad weather.

Unless you are an experienced camper or Scout, you may not even know how to cook on a campfire. Packet meals (one dish wrapped up in heavy-duty tinfoil and roasted) are a good way to cook with fireplaces and campfires. You can read more about that here.

Image from Wikimedia
A cast-iron dutch oven is another great way to cook on a campfire. There are primers on cast-iron dutch oven cooking here, herehere, and here. They can be used with either wood fires or with charcoal.

The key is to heat your fire to the coal/ember stage, then put coals on top of the lid as well as below the pan. Then you are able to heat the food from all sides, which is more efficient. Don't forget that you can also turn the lid upside down on a fire and use it like a fry-pan.

While campfire and fireplace cooking can be a good adjunct to your preparedness plans, don't rely on it as your sole source of cooking in a disaster. It just requires too much fuel for frequent cooking and must be tended constantly. And campfires have to be done outside in a well-ventilated area, which may not work in some weather conditions.

So while campfires and fireplaces can be one tool in your preparedness toolbox, they shouldn't be the only tool there.

Camping Stoves or Barbecues

Image from Wikimedia
A backyard barbecue is a non-electric cooking source that most people already have on hand. As a result, they are often the most-used resource during a power outage. Most use charcoal or propane as a fuel source.

Portable camp or hiking stoves are the next most-used emergency cooking resource. There are many different types that use various types of fuels. You can read more about these options here.

Propane camping stoves are one of the best options. They are very portable, propane is fairly cheap, and you can store propane canisters ahead of time for an emergency. There are many different types of propane camping stoves available, so you can choose the type that suits your budget and needs.

Propane stoves have to be used outside due to carbon monoxide build-up, but the flames are adjustable so they are adaptable for many different types of cooking (stews, grilling, frying, simmering, etc.). They are also pretty lightweight and reasonably transportable.

Image from Wikimedia
Because many disasters or power outages occur during bad weather, many people attempt to use their BBQ or camp stove inside a garage or other enclosed area. This is deadly and kills people during power outages. Camp stoves and BBQs should only be used in open, extremely well-ventilated areas. If you have any doubt whether your ventilation is adequate, have a carbon monoxide detector nearby, just in case.

Remember that camping stoves and barbecues are useful only as long as you have fuel to power them. Have a good reserve of emergency fuel on hand, and have some other cooking options available in case your emergency goes on longer than your propane or charcoal supply.

Sterno/Butane Stoves, MRE Heaters


Image from Wikimedia
Sterno/Butane stoves and MRE heaters are great choices for cooking during a power outage since they are the only ones that can be safely used inside. This is HUGE during a winter storm! You certainly don't want to go outside and freeze in order to make warm food, which is what you have to do with most other emergency cooking options.

If you live in an area where cold or bad weather might be an issue, these options should be part of your emergency preparation. They can be found online, at restaurant supply stores, Asian food stores, or at camping stores.

Sterno is a solid alcohol fuel that comes in little cans. You open the lid, light it, and use it to warm food set on a grill or screen above. You extinguish it by simply sliding the lid onto the can. Caterers often use Sterno to keep buffet food hot at special events. At our house, we use it for cheese fondue (a family tradition in my husband's family). Many people also use it with chafing dishes, to keep food warm during parties or picnics.

Sterno fuel is basically denatured, jellied alcohol. It comes in small cans; a small 7-ounce can lasts for about 2 hours of continuous burning. It is very affordable; a 7-ounce can costs about $3, or you can buy a set of cans at once and get a volume discount. Keep the fuel away from little ones, though, since it is toxic.

Sterno stoves work well for heating up small meals like canned soup or stew. You can't easily control the flame intensity or heat, though, so they do not work as well for cooking meals from scratch, grilling, or getting the internal temperature of meats into the safe zone, etc. But for the re-heating common to most emergency cooking, they are just the ticket.

Image from Big5sportinggoods.com 
Butane stoves are a nice alternative to Sterno stoves. They are often used for powerless cooking during catering events, and frequently used for table-side cooking at various Asian restaurants.

A good Butane stove allows more flexibility in flame control and temperature than Sterno cooking, so it is a better alternative for cooking things from scratch and cooking meats, whereas Sterno is best at reheating pre-made foods.

Like Sterno, Butane stoves are safe for cooking indoors. Butane canisters are very affordable (slightly cheaper than Sterno) and last about the same as Sterno cans. On the other hand, Butane is more volatile and must be stored carefully. It also does not perform well under cold conditions.

Image from Wikimedia
MRE (Meals Ready to Eat) heaters are what the military gives to soldiers to heat food up out in the field. They use a combination of chemicals (iron, magnesium, and salt) that when mixed with water, create heat in an exothermic reaction. Their big advantages are that they provide flameless heat and are small and portable.

While they take a while to heat up and don't heat much more than some water or a one-person meal, MRE heaters can be useful as an addition to Sterno/Butane stoves because they too can be safely used inside.

Like camping stoves, Sterno/Butane and MRE heater options are only useful as long as the fuel lasts. Therefore, have a bountiful supply on hand in case your power outage/emergency lasts more than a couple of days. Use other back-up options like campfires or camp stoves during the day so you can keep your Sterno/Butane for priority times (like at night, or during in bad weather).

While these stoves are promoted as safe for cooking inside, some authorities still recommend having a working carbon monoxide detector in the room with you, just as a precaution.

Rocket Stoves

Image from Wikimedia
Rocket stoves are an excellent emergency cooking option, although they are a bit pricey.

Rocket stoves (including brands like StoveTec and the Ecozoom) are super-efficient portable stoves that use an insulated L-shaped combustion chamber to cook foods quickly and easily. They don't take much fuel because the design is so efficient.

The best Rocket or Volcano stove models can cook using just about any biomass, including twigs, pine cones, dried corn cobs, pine needles, and other small items that normally wouldn't get used for a fire. This means you can cook without needing big logs or lots of firewood, and a lot less energy is wasted. This efficiency is a huge advantage in an emergency.

The disadvantage of rocket stoves is that they must be used outside, and even though they are far more efficient than a campfire, they do take biomass and must be tended constantly. They are also pretty expensive for an initial purchase, and are fairly heavy to lug around.

Image from rootsimple.com 
You can buy expensive, super-efficient rocket stoves online, or you can build your own pretty easily with #10 cans (coffee cans). You can read more about that here, but remember that your own will not be nearly as efficient as a professionally-built version.

If you have the money to buy one or want to build one, rocket/volcano stoves are a great option for powerless cooking. They really are astoundingly efficient and their ability to use small amounts of biomass make them extremely flexible in an emergency when traditional fuel may be scarce.

Haybox Cooking

Image from Mother Earth News
Hayboxes are basically a heat retention thermal cooking method. They use the initial cooking heat to continue the cooking process inside an insulated container without additional fuel. Hayboxes can be a useful addition to emergency cooking because they minimize the use of fuel. It's like a non-electric crockpot on steroids.

Basically, you begin cooking your food in the usual way, by bringing it to a sustained brisk boil over a campfire or portable stove of some kind. However, once the initial cooking has been done, you remove the pot from the heat source and put it inside an insulated cooker, box or bag. It works like a thermos, except that the initial heat of the food combined with really efficient insulation keeps the cooking going inside the pot. In time, the food will finish cooking on its own.

Hayboxes got their name from the fact that early versions often used a box filled with hay for heat retention cooking; sometimes they were buried in the ground for another layer of insulation. Although they have been around for many years (medieval cooks used them), hayboxes became popular again in the modern age during World War II to conserve rationed fuel.

Wonderbag instructions
Hikers and backpackers have used a variant of a haybox for years, starting up a soup in the morning, placing it in a sleeping bag or other insulator during the day, then coming back to a hot meal at the end of the day. In Asia, thermal cookers (like a haybox, but with more modern insulating materials) have become very popular in recent years. And insulated cooking bags like the Wonderbag are now being distributed in Africa to improve conditions for third-world families there.

The biggest advantage of haybox cooking is that it can save significant amounts of fuel. Fuel is only used for the initial heating, not the whole cooking time.This is a huge advantage in an extended emergency or power outage when alternative fuel sources (like propane) are limited and will not last that long.

Another advantage is that the prolonged cooking makes for more tender meat and better flavor, which is why Cantonese cuisines in particular favor thermal cookers. In addition, haybox cooking can lessen exposure to smoke and toxic fumes from cooking fires, which can be a significant advantage in third-world countries. It also saves water because less water evaporates out of the dish, another advantage during an emergency when drinkable water may be scarce.

The disadvantage of haybox cooking is that it takes a long time. Cooking a soup or stew usually takes about 3x the amount of time it would take on a stove. This means you have to plan ahead and there is less instant gratification when you are hungry. However, it also means that you can start dinner in the morning, leave it to cook while you do other tasks, and then come back to a hot dinner. There's no need for someone to stand around and tend the fire or stir the pot.

A potential disadvantage of haybox cooking is food safety. It's not always easy to know when meat is cooked enough to remove from a primary heat source and put into the haybox to finish cooking. And if the food is left in the haybox too long, it may eventually cool out of the safety zone and bacteria could start to grow.

As a result, you might want to ensure that any meat you use is cut into smaller pieces and cooked pretty thoroughly before transferring it to the haybox, and that you leave the food for several hours in the haybox to be sure it is thoroughly cooked. If you are uncertain about its safety, you may want to use a food thermometer to check the internal temperature before eating. If the food has cooled a bit, you may want to re-heat the food to the boiling point before serving it. There are guidelines for pre-cooking times available in some thermal cooking kits that may help you to feel more secure with this process. As long as you use common sense, it should work fine.

http://www.83rdsheffieldguides.co.uk/1_42_Making-a-Hay-Box.html 
You can make your own haybox, or you can buy a pre-made bag or thermal cooker. Professional vacuum thermal cookers are quite expensive ($150-200) but are extremely efficient.

Wonderbags can be bought for around $50 and the nice part is that one will be donated to a third-world country as part of the price of your purchase. Or if you are handy, you can sew your own version.

Hayboxes can be made very cheaply out of a box and materials you may have around your home but may not be quite as efficient as professionally-produced ones. In a pinch, you use a picnic cooler and some wool blankets or quilts around a good metal pot, but better ones take a little more construction.

If you want to make your own haybox, choose a box that is somewhat larger than the pot you will be using. Line it with paper, tinfoil, emergency survival blankets, or other similar material if it has any gaps. Or use a picnic cooler or ice chest box, since that is already quite well-insulated.

Image from Fireless Cooking, link below
Some people even make boxes with openings for two separate pots, so they can cook multiple dishes at once. A hall bench or toy box might be adaptable for this purpose.

Once you have your box, fill it part-way with insulating materials. Choose materials that will trap air for more efficient heating, like hay, shredded newspaper, Styrofoam packing materials, cotton batting from furniture or pillows, quilts, wool, moss, or sawdust. Don't pack the materials in super-tightly; it is the air pockets that are the key to the insulation, as in a down quilt.

Hollow a spot in the insulation for the pot, then line the whole thing with a piece of fabric, stapled to the walls or outside. This will help keep the insulating materials from accidentally getting into your food. Then fill a pillowcase with insulating materials to go around the top of the pot. The fit should be snug around the pot but enable the top to close without any gaps.

Choose a pot that will maximize heat retention, like cast iron, copper, or steel. A cast-iron kettle (like you'd use for camping) is perfect for the task. Use a pot with a short handle and a tight-fitting lid; simmer with the lid on so the lid is pre-heated too before transferring it to the haybox.

Image from Wikimedia
Soups and stews are perfect for haybox cooking, as are beans, grains, and similar foods. Or you can cook breakfast cereals overnight in a haybox and have a hot breakfast ready in the morning immediately upon rising. You can also pre-heat water overnight for tea or hot chocolate, which is nice quick warm-up in the morning if the power is out and the house is cold.

Recipes for haybox cooking can be found here, here, or here. Remember that because you are cooking with retained heat and steam, there is less evaporation during cooking, so use slightly less water in your recipes than normal.

There is a book from 1913 on Fireless Cooking that can be downloaded for free from an archive because it is no longer under copyright. It has detailed instructions and recipes that can be used for different types of hayboxes, including the double-haybox seen above.


Solar Ovens

Image from Wikimedia
Solar cookers are a great resource for truly "powerless" cooking. Like a haybox, you start them cooking in the morning, and your meal is waiting for you that evening.

There are several different kinds of solar cookers, from solar box cookers to parabolic cookers to solar panel cookers. To learn more about solar cookers, click here or here.

The advantage of solar ovens is that they use NO fuels at all, just the free power of the sun. In a long-term power outage, they are probably the most useful method of cooking available because you'll never run out of fuel. You can still cook, even if you are all out of propane, Butane, Sterno, and firewood. In addition, solar ovens can pasteurize water as well, making it safe to drink without using any fuel or chemicals.

The disadvantage of solar ovens is that they depend on having enough sun. In some areas of the world, that's a challenge. And of course, they can only cook during the daytime, not at night.

And even when you do have sun, the angle of the sun changes throughout the day. Therefore, solar ovens work best when someone is around to change the angle of the solar oven periodically throughout the day in response to the path of the sun. That may not be practical, especially in an emergency situation. However, on a good sunny day, most meals will cook just fine even without optimal sun angles. It is only on partly-sunny days that babysitting the solar oven may be important.

Professional-quality solar ovens can be pricey. They are worth the money if you have abundant sun in your area and might be able to use it frequently. However, a less-efficient version can also be made from scratch. Here is a video of one you can make yourself for about $5.

A homemade solar oven is worth making if you might use it only occasionally. However, the well-engineered and super-efficient professionally-produced ovens are worth the price if you plan to use them regularly or if you don't have enough money for a large stash of alternative fuels. You can find a comparison of many different solar oven brands here.

Because solar ovens are dependent on having decent sunshine, it is important to have other back-up cooking options for times when sunshine is not available. However, solar ovens are so versatile that they are an excellent addition to emergency cooking choices if you live in a high-sunshine area of the world.

Summary

There are many ways you can cook during a power outage or other emergency.

It is best to have several cooking options available to you so that you are not dependent on any one method.

A Sterno or Butane stove is probably the most desirable because you can re-heat and cook safely inside during bad weather  or at night. You don't want to have to stand on your back patio in freezing weather or pouring rain in order to feed your family. Although much of your cooking will probably be done outside with other sources, you do want to have an indoor option for when conditions are not hospitable.

Next most handy might be a camp stove or a rocket stove. This will probably be your first choice for outside cooking during the day and when conditions are good. Combine that with a haybox (start it on the camp or rocket stove, then finish it in the haybox), and you can stretch your fuel reserves most efficiently.

Additional options include campfires, fireplaces, backyard BBQs, and solar ovens. Which is most useful to you depends on your unique circumstances. Develop a plan that addresses your situation and gives you several options to choose from.

In addition to cooking equipment, there are other things you need for cooking without power.

For example, if you are planning on re-heating canned foods, don't forget to have a couple of manual can-openers on hand. Have plenty of batteries to power flashlights, headlamps, and lanterns so you can see to cook when it gets dark.

Consider having disposable dishes on hand too. Although it's wasteful to use paper cups and plates in everyday life, using them in an emergency is only common sense. Paper plates are burnable and won't require you to use up precious fuel or waste potable water for dish-washing. A dollar store is often a good, cheap source for paper supplies like this.

In order to fix meals without power, remember that you will also need to have a good reserve of drinkable water. Soups and stews are the best recipes for emergencies but need lots of water, and any freeze-dried or dehydrated foods need water for reconstitution. Most experts recommend at least 1 gallon per day for each member of the family just for drinking; you may need a bit more for cooking as well. Store enough for pets too.

5-gallon or 7-gallon portable camping containers work well for storing water reserves. Store enough for at least 3 days at a BARE minimum; 1-2 weeks is a much more sensible amount. Then have a way to filter and purify water so that if your emergency goes on longer than a week or two, you can make other water safe to drink.

Use your fuel sensibly. If you are already heating up food, boil some water at the same time and put it into some good thermoses for later use. Wrap the thermos in insulating material (like a tea cozy) to help it keep warm longer. Use the heat to fill hot water bottles or make heated bricks, which can help keep you sleep warmer too. If you are going to burn fuel, make it work in as many ways as possible for you.

Finally, think through the potential emergencies in your area and how long it might take to get help. Although most power outages last only a few hours to a couple of days, many areas of first-world countries have had to go weeks or even months without power at times. Have enough food and water reserves and a multitude of creative ways to cook so that you could last that long if needed. Don't rely on only one method; have several possibilities ready so that you have back-up if one type of fuel runs out or doesn't work. Or as some people put it, "Have back-ups for your back-ups."

Being ready to feed your family without power is all about creativity, having a good food and water reserve, and having multiple cooking options available to choose from.



Other Information and Resources


Monday, March 17, 2014

A Woman Your Size Has No Business Being Pregnant

Although this past year's Turkey Awards went to ignorance around PCOS, we have to give a Dishonorable Mention Turkey Award to a recent entry at My OB Said What?!?:
“Why are you crying? It’s not like you lost anything. A woman your size has no business being pregnant anyway.” -ER nurse to an overweight woman suffering the miscarriage of her third child
Really? REALLY?!?!

It's hard to believe a healthcare worker would say say something this insensitive and unprofessional to any woman in the middle of losing her baby, but sometimes they do. Healthcare professionals are human like anyone else, of course, and have rough days where they find it hard to be empathetic....but even in the middle of a bad day, they need to remember the wisdom of silence when you can't quite muster up empathy.

There is nothing quite so tender as a miscarriage or stillbirth. Medical professionals need to remember that just because a miscarriage is early doesn't mean it's not still a loss. Even if an early miscarriage doesn't seem like a loss to them, they need to honor the fact that it feels like a loss to THAT patient.

And telling someone not to cry when they are in the middle of losing someone precious to them shows a tremendous lack of empathy. Most likely it comes from the fact that the person's grief is making the medical professional uncomfortable and they don't know how to deal with it, so they belittle the person's pain and tell them to just get over it.

But it's not supposed to be about caregiver's comfort level, it's about the PATIENT'S comfort level and needs, and they need to remember that in their dealings with patients. You don't have to feel things the same as your patients, but you need to be respectful of the patient's feelings, even if you don't agree with them, aren't what you personally would feel, or make you uncomfortable.

But the thing that bothers me the most about this entry is the idea that women of size "have no business being pregnant."

That's absolute nonsense, yet it's a very common feeling among many medical professionals, due to the hyperbole around risks in women of size. Some have been taught that fat women are at SUCH a high risk that they have come to believe that fat women can't possibly have a healthy pregnancy or a healthy baby, and that's simply not true.

Many of us DO have healthy pregnancies and healthy babies, and it is NOT an irresponsible act to have a baby at a larger size.

Yes, women of size are at increased risk for some complications, but being at increased risk does not mean that complications will happen, nor does facing potential risk disqualify you from motherhood.

All kinds of women are at increased risk for complications due to various factors (age, family history, racial or ethnic status, various health conditions) but usually are not told that they have "no business being pregnant." Their risk status is acknowledged and counseling toward risk mitigation is given. The same can be done for women of size.

In dealing with women with risk factors, the focus should be on helping them have the healthiest pregnancy possible, even while acknowledging possible complications. Many caregivers are mature enough to recognize that plenty of women will have perfectly fine pregnancies and healthy babies despite having risk factors.

And in those who do experience complications, mature caregivers realize that the emphasis should be on kind and empathetic care in helping the woman towards the best possible outcome, not on scolding and judgment.

Although I'm sure there are women with various other risk factors who have faced reproductive policing, most of the time these days it's considered wrong to question a woman's basic right to motherhood, even in a mother at risk for complications. Yet reproductive policing and shaming seems to be considered acceptable behavior in the medical community towards "obese" women.

Sorry, but NO ONE has the right to forbid reproduction. The government, medical authorities......history has shown time and again that these people should NOT be the gatekeepers of reproduction. Whether to have a baby is a decision for the woman and her partner to make and no one else.

Couples should be counseled (with compassion, not scare tactics) about their risk status and possible complications, yes, but if they decide to move ahead anyhow, they should be treated with respect.

The ability to reproduce is one of the basic rights of people in society; the state and/or medical caregivers have NO business trying to govern that. 

Nor should women be subject to shaming or scolding for the simple act of wanting to have a family. 

That applies just as much to women of size as well as to women in any other group.

Sunday, March 9, 2014

The Disappearing Ones: Weight Loss Surgery, Shame, and Isolation

One of the most distressing things about Weight Loss Surgery (WLS) I have observed over the years has been the tendency of many people who get WLS to disappear after a few years.

I've been thinking about this a lot and have debated voicing my concerns in a public forum. I don't want to add to the stigma and shame that some post-WLS folks experience, yet I think it's important to highlight this issue.

Over the years, I've had several friends and acquaintances undergo WLS, usually gastric bypass. I always express to them my strong reservations about the possible long-term consequences of this decision, but I also believe that people are the boss of their own lives and it's not my job to police their choices. They are adults and they get to make their own life decisions, whether or not it's a choice I would make for my own life.

I try to be supportive of them afterwards without being judgmental, although it's not easy sometimes because I am not a fan of WLS. Still, they are my friends and I want the best for them, so I try to be as supportive as I can.

But it's been striking to me how often WLS folks follow a social pattern of increasing isolation afterwards. Many times they drop out of groups they previously frequented, away from previous friends, and become more and more isolated socially.

Let's be honest. The initial weight loss after WLS is often truly amazing, and they celebrate and advertise every second of that honeymoon broadly to the world. I don't blame them; that honeymoon period is pretty intoxicating. Anyone who has ever had a significant weight loss has felt it, and the weight loss after WLS is particularly jaw-dropping and probably rather exhilarating.

After a post-op adjustment period they often feel wonderful, they revel in their ability to buy new clothes, everyone congratulates them on how great they look, life is great, and they usually talk loud and long about how wonderful WLS is to anyone who will listen.

But after several years, things aren't always so great. Nutritional deficiencies begin to show up, especially for those with gastric bypass or other malabsorption procedures. Complications start to pile up. Anemia is a frequent companion for many, and often doesn't respond very easily to treatment. I've seen a number with headaches, gut issues, hypoglycemia episodes, hernias, seizures, broken bones, osteoporosis, additional surgeries, chronic pain, really serious eating-disordered behaviors, and addiction issues.

This post-WLS complications part is not so great, but it often gets hidden or shrugged off as unimportant compared to the importance of "getting healthy." (My response: How "healthy" are you really if you are dealing with health issues like these?)

A significant amount of weight is regained by many as the body adjusts and begins to get more efficient at absorbing calories again. But now the self-condemnation is even worse than before. Individuals often feel terribly guilty, ashamed and blame themselves for the regain.

Some start to indulge in weight loss extremism. Often they get back on the weight yo-yo rollercoaster, but this time with even more self-blame, more extreme diets, and more extremes of highs and lows in their weight trajectory. Some resort to even more extreme weight loss surgery procedures with truly scary side effects in order to "fix" the regained weight.

The way some of them talk about themselves is really sad; the self-condemnation and self-recriminations can be brutal. (To be fair....not all of them; some seem to do fine, both physically and emotionally.) But some of the self-loathing talk I've seen on WLS support groups and blogs is very distressing; it sure doesn't sound like emotionally healthy self-love or improved self-esteem.

Worse, some just start dropping out of life. They stop associating with people they hung out with before. They tend to start hibernating or withdrawing socially, or seeking new groups to be with. And they often stop going to WLS support groups, stop seeing their WLS doctors, or stop participating in post-WLS research studies.  (The number of drop-outs in WLS studies is really high, which is why you have to apply a lot of skepticism to many of the glowing research findings from them.)

This doesn't happen with everyone who has had WLS, of course. Some stick around and don't drop out socially at all. Some do great long-term, and even maintain the weight loss reasonably well. It's important not to exaggerate the problem....but I do see quite a few drop-outs happen.

And I especially see that post-WLS folks often stop associating with other fat people.

There could be a number of reasons for this. Some folks with WLS no longer want to hang out with fat people who haven't had the surgery; either they no longer identify with us, or they prefer to actively disassociate themselves with fat folk, as if we somehow might re-infect them with fatness via "bad" habits or a lack of all-consuming focus on weight loss. Perhaps they simply don't feel they have much in common with us any longer, or are tired of what they perceive to be the "excuses" they think we make around our fatness. Fair enough, I guess, though obviously I don't care for this reasoning.

Some fear the condemnation and "I told you so" attitudes of some people in the Fat-Acceptance (FA) community if their WLS has bad side-effects or if they end up with significant weight re-gain. We all know how hard it is to face people again when you've lost a lot of weight and then regained it eventually; how much harder must it be for those who went to the extremes of having WLS to face fat-acceptance friends after a regain. And to be fair, some FA folks are pretty unkind to folks who have had WLS. But even when we are welcoming and non-judgmental to WLS folks, they often avoid us.

In addition, shame at having regained substantial amounts of weight or experiencing negative health complications lead many WLS patients to drop contacts within the WLS community, the very people who should understand the most. Judgment within the WLS community can be EXTREMELY harsh towards those who don't act as relentlessly positive cheerleaders for the surgery and for weight loss. This turning on their own is a hushed-up secret in the WLS community, and the condemnation of formerly-supportive folks especially bitter to WLS survivors with substantial regain or side effects.

So many people who have had WLS find themselves increasingly isolated. They don't feel comfortable or welcome in fat-acceptance groups, they don't feel welcome in WLS groups if they've regained weight or had complications, and they've often isolated themselves from the friends and family they hung out with previously.

There can be other reasons for dropping out socially too. Some are embarrassed at the gastric side effects (like vomiting, gas, or fecal incontinence) that can go along with the surgery. They may stop participating in activities because they are afraid of embarrassing themselves at social events or because there aren't bathrooms close enough for them to feel confident about going somewhere. Or they develop side effects (like hypoglycemic seizures or extreme fatigue) that make it hard for them to get out on their own. Or they don't always feel well enough to get out much because of the anemia or the other nutritional deficiencies.

No, I won't tell any stories here of friends of mine who have had WLS and dropped out. Their stories are their own, and I care for them too much to dissect their stories here. But I think a non-identifying story about a casual acquaintance might be illustrative.

I went to a number of NAAFA conferences over the years. I remember one where I met a woman who was a few months post-op from gastric bypass, but her wound hadn't healed. She was very pro FA but just felt she had too many health concerns not to consider the surgery. So she tried to bridge both worlds but was understandably nervous about coming back to a NAAFA conference after having had the surgery.

I could empathize with her reasons for the surgery, even if I didn't agree with the decision, and wanted to make sure she still felt welcomed and valued. So we hung around together that conference. I enjoyed her company. I helped her pack her infected wound and helped with some of her needed self-care. We talked a lot about why she did the surgery and the pros and cons of it. It wasn't a decision I would have made, but I could understand her choice. I wished her only the best when we parted.

I saw her again the next year. She was very honest about how bad some of the G.I. effects can be. She said she'd heard of some WLS folks who were fired from their jobs or asked to leave their apartment complexes because of the smell from the G.I. issues. She spoke about the folks who experienced unpredictable soiling of themselves and began curtailing their activities as a result. Or who couldn't cope with the unexpected and violent vomiting that can occur without much warning.

She seemed okay, on the whole. She had severe issues with anemia that didn't respond well to treatment, and she'd been doing some IV iron treatments to help. She had some of the nasty G.I. side effects but was still employed and still coping. Again, I wished her well when we parted.

However, I never saw her again at any NAAFA conference. Perhaps she returned in a year that I didn't, but I never saw her in any of the conference photos online. There were no obituaries posted or anything, she just dropped off the social radar. Maybe she lost lots of weight and felt she didn't have anything in common with NAAFA folks anymore, maybe she felt too judged by some folks at the conference, or maybe she just didn't have the money to come anymore; who knows?  But I know I was troubled at how she dropped off the social radar.

I've seen this happen with dear friends and acquaintances in the birth world too. They have WLS, stick around for a while, but after a few years no longer frequent the same groups, even though these are birth groups and not FA groups.

I don't know why many of my acquaintances who got WLS have dropped out of touch. It might be just moving on with life and having new interests. It might be not wanting to be around people who remind them of what they used to be like. It might be shame over weight regain. It might be embarrassment over G.I. side effects. It might be having to deal with medical complications like anemia or seizures. It could simply be coincidence, but I doubt it.

Whatever it is, I am deeply troubled and saddened by my observation of how many WLS patients drop out of touch over time. And I was reminded of that again when I came across the study below on PubMed.

The pressure on WLS folks to only talk about the good, not the bad, and the shame they feel if they experience regain only makes it harder for these folks to find their way to a happy, balanced life. As one blogger writes:
There seems a conspiracy of silence among patients as well as providers. Patients who regain and live are reluctant to tell about their surgeries because both the public and their doctors blame them for their gain. Patients who have become ill from the surgery and live long enough to be reversed and get back normal digestion are often reluctant to talk about their bad experiences because new ops and providers can get mean to those who talk too negatively about weight loss surgery. 
Patients are so sold on this surgery that until they get really ill, they refuse to admit that it has a high complication rate and a higher recidivism rate...Even successful patients who have suffered difficult complications and talk about them in blogs have taken a lot of criticism from "the community".
We need less silence from the WLS folks, whatever their experience. 

We need less silencing and shaming in the WLS community towards those WLS folks who have complications or regain. And we need more empathy from the FA community towards folks who have had WLS, whatever their experiences; they are likely still going to be fat to some degree and still deserve support for their experiences, whatever they are.

We want WLS folks to stick around in our lives, whatever their weight is, and whether they are "successful" or not. Our love for them should have nothing to do with whether or not they are fat or skinny, whether they've maintained a loss, whether they've lost and regained, whether they have complications, or whether they are the poster person for the benefits of WLS. Whoever they are, whatever they look like, whatever they weigh, we love them and we value them and we don't want to lose touch with them.

If you've had WLS, don't disappear, don't hide, don't be silenced.  Speak out and stay in touch. We love and value you and want you in our lives.
*Do you know of other good support groups or blogs for WLS survivors who have experienced complications or regain and need to talk about this openly?  Feel free to post your suggestions in the comments.  
** Comments are welcome but please recognize the mission of this blog when commenting. Hate speech and pro-diet talk is not appropriate here and will not be published. If you are pro-WLS, there are plenty of other venues for sharing that view; this is not the place to promote it. However, if you wish to discuss the specific issues discussed in the post, you are welcome to do so as long as your comments are in the spirit of the blog and its mission. 


Reference

Int J Qual Stud Health Well-being. 2010 Nov 18;5(4). doi: 10.3402/qhw.v5i4.5553. "My quality of life is worse compared to my earlier life": Living with chronic problems after weight loss surgery. Groven KS, Råheim M, Engelsrud G. PMID: 21103070
Weight loss surgery is commonly regarded as improving individuals' health and social life, and resulting in a happier and more active life for those defined as "morbidly obese." However, some researchers have started to doubt whether these positive outcomes apply to everyone and this article explores this doubt further. More specifically, we focus on the experiences of women whose life situation became worse after weight loss surgery. The material draws on qualitative interviews of five Norwegian women undergoing the irreversible gastric bypass procedure. Our findings illustrate that the women lived seemingly "normal" lives prior to the surgery with few signs of illness. Worries about future illness as well as social stigma because of their body shape motivated them to undergo weight loss surgery. After the surgery, however, their situation was profoundly changed and their lives were dramatically restricted. Chronic pain, loss of energy, as well as feelings of shame and failure for having these problems not only limited their social lives but it also made them less physically active. In addition, they had difficulties taking care of their children, and functioning satisfactorily at work. Accordingly, the women gradually felt more "disabled," regarding themselves as "outsiders" whose problems needed to be kept private. The results highlight some "subtle" consequences of weight loss surgery, particularly the shame and stigma experienced by those whose lives became dramatically worse. Living in a society where negative impacts of weight loss surgery are more or less neglected in research as well as in the public debate the women seemed to suffer in silence. Their problems were clearly present and felt in the body but not talked about and shared with others.
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